Confidentiality
We keep all details of your treatment absolutely confidential, and
will tell no one without your permission. At the same time, it is
a good idea for your GP (your family doctor) to know about your
treatment, and it is best for you to tell him/her. You can then
discuss with your doctor what sort of record you want kept in your
medical notes.
Communicating information outside the Unit
With the introduction of the Human & Fertilisation and Embryology
Act of 1990, we are no longer allowed to disclose any information
regarding your treatment to anybody outside the Unit without your
written consent. Before your treatment commences, the doctor at
the Unit will discuss this with you and you will be asked to sign
a Disclosure of Information form. This will allow us to communicate
information to persons who may be involved in your treatment such
as your GP.
It has always been our preferred policy to keep GPs fully informed
of any treatment that their patients are having with us, in line
with good medical practice and as directed by the General Medical
Council. We believe that this communication is important for our
patients well being and is indispensable where the GPs are
collaborating with the treatment, prescribing drugs or giving injections.
We have also always respected the right of patients to have a say
in what is told to their medical practitioner and to their gynaecologist.
Information sent to the Human Fertilisation
& Embryology Authority
The Human
Fertilisation & Embryology Authority (HFEA) is a government
body that regulates infertility treatment in the UK. If you have
any queries about the information held by the Unit or the HFEA,
confidentiality or communication, please do not hesitate to discuss
it with the Unit or with the HFEA (see
Useful addresses)
The HFEA keeps a confidential register of information about donors,
patients and treatments. This register was set up on 1st August
1991 and therefore contains information concerning children conceived
from licensed treatments from that date onwards.
As from the year 2008, people aged 16+ (if contemplating marriage)
or 18 who ask the HFEA, will be told whether or not they were born
as a result of licensed assisted conception treatment, and if so,
whether they are related to the person they want to marry.
As the law now stands no information about patients, their children
and donors will be given out by the Authority, under any circumstances
other than those outlined above. The names of children are not collected.
The current law does not allow people who apply for information
from the register to know the identity of current or past donors*,
or of patients and their children. It is a criminal offence to disclose
that information.
The kind of information the Authority now collects, relates to a
donors appearance, interests and occupation. In the future,
Parliament might decide that adults who contact the Authority and
learn that they were born as a result of treatment using a donor
might be given some information about that donor.
*If a child were to sue the clinic for damages if that child were
born with a disability as a result of a donors failure to
disclose inherited disease, a court might require the HFEA to disclose
the donors identity under the Congenital Disabilities (Civil
liabilities) Act 1976.
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